Saturday, March 1, 2014

Random Ramblings

Good news, insurance approved the amount of test strips we actually use!  That only took two months!  We probably average 9-10 times/day.  Some days we only test 6 or 8 times and other days are 12 because of highs or lows.  Sugar Bear figured out he's been tested around 6 hundred times since coming home from the hospital.  We've spent around two hundred dollars ourselves on test strips (thank goodness for tax returns).  So this is fantastic news.  Now to look into coverage for a pump.  And see if we can't get that pen for lantus so we can be done with syringes for now.

We've had a week of higher numbers.  We finally got them back to range the last two days and then we had a low last night before bed.  Luckily juice raised it and it stayed consistent all night.

This is a great link with some basic information.  We've been trying to figure out how hubby and I could go out together without children.  We don't have our parents in town and our friends are not familiar enough with taking care of Sugar Bear so we're trying to find sites that might help with educating possible babysitters.  We do have a friend in a city about an hour from us that we found out last weekend would make a perfect babysitter-she knows carb counting, how to give shots, and emergency care.  It's all logistics.

The other thing on my mind is that spring is around the corner and what am I supposed to put in sugar Bears basket?  We usually have some jelly beans and chocolate bunnies.  I think I may make something like this I think the little guy would enjoy it and with my new food scale it would be doable to make sure each "carrot" was 15g.

Finally finished the little book I got at Christmas time.  It took me forever to read since time is never enough anymore and I was spending any and all free time researching.  I'm still researching but I'm trying to find a balance.

The teenager went to a gaming night at his school that was a fundraiser to help a child with diabetes get an alert dog.  I would love to eventually get Sugar Bear an alert dog before he moves out.  By then our little mini Aussie would be too old.  It'd be a relief to make sure he had a companion that could alert him when he was dropping or spiking.  It's expensive.  It's a long ways down the road.

First I want to work on the boy giving himself his own shots and the testings.  Get him comfortable with that and then learn the pump and CGM.  Sugar Bear has always loved monkeys and something like this might be useful.  Little guy liked the idea.

So mostly boring.  One could even say it's almost normal.  No, we haven't let our guard down but now the boat feels like it's rolling with the waves instead of feeling like we were going to capsize at any moment.  This is less stressful, still exhausting, still awful, but we're breathing, we're living.


  1. Hello,

    My name is Michael-John Smith. I was directed to your blog via Rachel. I want to let you know more about myself. On top of being a Registered Nurse with the Clark County Combined Health District, I have been a type I diabetic for 23 years. I am currently on the Omnipod pump. Part of my duties at the health department include diabetic education. If there is anything I can do to help, please let me know. I understand the difficulties with this disease and hope nothing but the best for you and your family. Please feel free to contact me via email at or by phone at 937-390-5600 ext 255.


  2. Hi Michael. It's nice to meet you. Thank you for the comment. The diabetes community is one big family. :)