Monday, May 15, 2017

When you get more than you expected

Diabetes Blog Week Monday prompt:

"Diabetes can sometimes seem to play by a rulebook that makes no sense, tossing out unexpected challenges at random.  What are your best tips for being prepared when the unexpected happens?  Or, take this topic another way and tell us about some good things diabetes has brought into your, or your loved one's, life that you never could have expected?  (Thank you, Heather, for inspiring this topic!)"

Hmmm, there are no rulebooks for life.  And very little with diabetes makes sense.  Although when my oldest was told this past november that he has gastropareisis he did say "Well, that makes sense.  No wonder I can't prebolus and when I do I go low."  Anyway, there are always good things even in the worst.

When SugarBear was diagnosed with Type 1 I couldn't imagine the good things and then when Drago was diagnosed I realized that even in this most awful space where both of my only biological children have this disease I could find the unexpected.  Drago was diagnosed 3-3-15 and in a very short while we were seeing benefits to having a second child diagnosed.  Drago is older (by four years) than SugarBear and up until SugarBear was diagnosed with Type 1, Drago had always been the one leading the way.  For a little over a year, SugarBear had something that set him apart, made him different.  Then it was Drago's turn.  In many ways it hurt more because we knew but it was also easier because we knew.  But what was an unexpected surprise was the benefits for SugarBear.  Drago got a Dexcom within a short period of time and all of a sudden SugarBear thought that would be okay.  When Drago got his pump, SugarBear was intrigued and now he too is pumping.  They encourage each other.  They know.  Another benefit before pumping if one boy forgot his insulin pen there was always backup (even at a full day at the amusement park after a JDRF walk).  Extra supplies another sort of benefit.  When we run low on insulin  (maybe because of insurance snafus which I would say are unexpected but never are) for one we still have insulin because we have a second person in the house with Type 1.

But how has diabetes brought unexpected good into my life?  I'd say the biggest blessing has been the people we have met on this journey through JDRF as well as just connecting because "we know".  I've met people with Type 1 in my community and online, at JDRF summits and because we connect on something that many just can't comprehend.  I've gotten even better at computations and have grown fond of numbers.  I've gotten a new appreciation for life and a perspective that allows me to keep going.  Type 1 colors everything in every color.  I've grown because of what our family is going through.  I've found the unexpected because the unexpected found me.


  1. Your sons look amazing. We are so fortunate that neither of our sons have T1, and that so far our grandchildren have been. Moms and dads of our T1children are the true superheros of our community.

  2. I hate that they both have diabetes, but I love that they have each other for support and help. (And that they have you taking great care of them too!!)

  3. Aww, that is a great silver lining. I agree with Karen, it sucks that they both have it but I love they can support each other.